Journal Articles

A qualitative analysis of an evidencebased lymphoedema booklet for melanoma patients

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A qualitative analysis of an evidencebased lymphoedema booklet for melanoma patients

Annie Liu, William Tang
9 December 2020

Aims: Develop and evaluate an evidence-based resource booklet for lymphedema in melanoma survivors. Methods: Melanoma patients and healthcare professionals were surveyed between January and April 2013. Booklet structure and content, and familiarity with lymphedema topics pre- and post-booklet reading were assessed. All questionnaires were evaluated using aggregate descriptive statistics for quantitative data and thematic data analysis for qualitative data. Results: Patient interviews revealed dissatisfaction with lymphedema management and a strong desire for informational resources. Knowledge of lymphedema improved modestly after booklet reading. Patients provided strong positive feedback on the content and structure of the booklet (9.4/10), with all categories scoring above 9. Surveyed professionals reported a high degree of familiarity with lymphedema topics (9.2/10), and a majority were likely to recommend the booklet to newly diagnosed melanoma patients. Conclusions: Preliminary evaluation of our evidence-based resource booklet generated positive feedback and suggests it has utility for improving patient education and management of lymphedema.

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